On Thursday, October 20, Mary and I, surrounded by a few close family members, heard a statement from a High Risk Pregnancy OBGYN that we haven’t heard since 2006,
“Your baby is not compatible for life.”
In other words, our Baby O (either Oliver or Olivia) will not live.
A few things we’d like to let you know:
- Our 7 year old daughter Chloe has been told that Baby O “is sick.” This is true. Baby O has bilateral multi-cystic kidneys, but will die from undeveloped lungs, if this continues to progress as Alex did in 2006-2007. We tell you this to help respect our family in this time, particularly Chloe, who responded Thursday night with “I want Baby O to live.” Our reply?
- “God is still good.” He is. He always will be. We are teaching our daughter that God is good, always, and we will still worship as such. His plan for Alex wasn’t to let us bring him home from the hospital. Instead, God has used Alex to deepen our faith in the Creator of the universe at the same time as deepening our marriage bedrock. God’s plan may not be for us to bring home Baby O, which will be heartbreaking and terrible, but we will use our story to point to His story. At the end of our lives, His story will remain. So let’s invite others into the story of Jesus, that we can take heart because Jesus has overcome. But why be so open with you?
- We want our stories to count for the fame of Jesus. You’ll see us at church or in our jobs or at the ballet recital or in the community or online, and we don’t want it to be awkward for you. We’ve seen that before, and we want to foster openness and dialogue. Most people conversationally ask “How are you,” not knowing how to begin a conversation or not knowing how to broach the issue. We encourage you to stay up to date with our story. In so doing, you’ll see us struggle, tears as we pray or speak, our voice tremble as we echo “God is still good.” And that’s good because it’s authentic. Authentic stories count for the fame of Jesus. We will be greatly encouraged as you exhibit authenticity with your story. So don’t walk on eggshells around us.
Will you walk this journey with us? It may be updates via this blog, or on Facebook, or on Instagram, but let’s be real. Let’s walk together. Let’s see Jesus in the valley together. We need you.