On Monday, October 24, my wife received an email from a family member that instilled within us a spark of hope.
Long after we chased through the email, which I’ll get to in a moment, this quote hit us, and we’d like to share it with you:
But “it” for you may be a job loss, medical news, a political issue, a relationship break. Know this: your impossible position doesn’t have to stop you from moving forward. It just means you have to move differently, trusting in the Lord to direct your unknown (to you) steps.
Back to the email: Mary called me shortly after I got ready for work, excitedly telling me about this email about a congresswoman’s miracle baby. Her hopes were high.
So she asked if I could “do my thing” and find out more (I’m pretty good at internet research).
Needless to say, I found the Congresswoman’s office numbers on her website and put in a message at her state office as well as spoke to an actual aide in her DC office. She assured me that Congresswoman Beutler would get back with me, but for safe measure I emailed their generic email as well.
Approximately 3:30pm that day I received a phone call from a Washington state number, and on the other end I hear:
“Hi, it’s Jaime Herrera Beutler. Is this James?”
I must have sounded like an idiot, tripping over “Uh yes, uh yeah, Congressw…”
“Jaime. Call me Jaime.”
We spoke about their story, and she asked about ours. During our 30 minute conversation, I heard her say to a girl near her, “No, you can’t have Coke right now, but mommy will give you a drink.”
I asked, “Is that Abigail?” (Her daughter who was also diagnosed with Potter’s Syndrome, and is the “miracle baby“)
“Yes, she’s 3 and smart as a whip.”
At the end of a hopeful conversation, she proceeded to say that the next step, if we’d like, is that she would contact some nephrologists and ask about one near us that does preemie dialysis, as well as connecting my wife to a woman in California that has also gone through this bit with two older kids at home (like us!).
She closed with that statement I shared above, “We share this (their story) because it (Potter’s Syndrome) doesn’t have to be a death sentence.”
Folks: share your stories. You never know who needs to hear it.
So, here’s the update:
Jaime is working on finding us a closer hospital that does preemie dialysis, because once we deliver, Baby O will need that immediately, for 2-3 months, and then for a couple years after that until Baby O gets a kidney transplant.
After finding that, we will cross check to see if there is a hospital nearby that performs the amnioinfusions, giving the baby enough fluid to build lungs.
Once we’ve nailed those down, it’s time to get started.
We thank you for your prayers and can’t wait to update you on the stories of who’s praying for us and where as well as stories of how people have encouraged us.